Welcome to CureRare
Imagine your child is born with a rare metabolic disease that leads to severe disabilities even in infancy. There is no coordinated provision of information on the disease and its course, no patient network, no research.
We help you to overcome these shortcomings and to shape your own hope.
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“Alone we can do so little; together we can do so much”Helen Keller
You always feel alone with a rare disease – we know this from our own experience. To radically change this, there are many paths that are best taken together with others who already know this path. Would the exchange with others in a self-help group help us? Are there clinics specialised in my disease? Who would research therapies? How much would it cost? Who coordinates patients, doctors and researchers? We bring you to the table with experts and make sure your interests are protected. We submit funding and research applications for you and as soon as the first research activities start, we also take over their coordination. So you can take care of your family!
We are proud to be supported by the Wirkungsschaffer scholarship at the Social Impact Lab Stuttgart/Germany!